IMPACT THAT MATTERS

Driving
CMT Research
with the
Patient’s Voice

With your help support love
nothing is impossible!

Join GRIN

Join GRIN

Turn your symptoms into science

Join Team CMT

Join Team CMT

Join the movement to make a difference for those living with CMT

Your Monthly Gift

Your Monthly Gift

Start your Monthly Gift of $10 today or consider the many other ways to give!

Latest Research

Latest Research

HNF has been conducting patient-focused research dating back to 2007.

Birthday Fundraiser

Birthday Fundraiser

Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
Allison and Daniel Cohen

Welcome To The
Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

What is CMT?

CMT Genie

Patient Resources

Pediatrics & CMT

About HNF

Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.

HNF has also developed a regulatory strategy with a menu of resources and tools to support the FDA Guidelines about the impact advocacy could have on accelerating treatments and resources to help industry follow “FDA Guidance for Industry.”

HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.

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From Our Blog

LATEST

Jaxson’s Shotguns & Guitars

Jaxson’s Shotguns & Guitars

Thank you to everyone who attended this fun event with music, shoes, and plenty of shotguns, for Jaxson's Cure. For the entire photo gallery follow this link.

Can Existing Drugs Treat CMT?

Can Existing Drugs Treat CMT?

HNF, in partnership with Rarebase, is leading the charge in the first-ever research initiative to tackle multiple types of CMT in one project using its tech-enabled drug discovery platform called “Function.”

The Key Role CMT Patients Play in Research

The Key Role CMT Patients Play in Research

Presented by: Joy Aldrich, HNF GRIN Patient Registry Coordinator Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In...

Featured

How to get genetic Testing: The CMT Genie

How to get genetic Testing: The CMT Genie

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

Could CMT’s Awareness Campaign Begin with CMT (Country Music Television)? Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine...

Featured Webinars

Active Hands

Active Hands

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar

CMT-Connect Pain Webinar

New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.

Cannabis & CMT

Cannabis & CMT

An insightful CMT-Connect Webinar discussing CBD and Cannabis for CMT symptoms

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