Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
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Join GRIN
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Latest Research
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Birthday Fundraiser
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
CMT Genie
Patient Resources
Pediatrics & CMT
About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
HNF has also developed a regulatory strategy with a menu of resources and tools to support the FDA Guidelines about the impact advocacy could have on accelerating treatments and resources to help industry follow “FDA Guidance for Industry.”
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
From Our Blog
LATEST
TCS New York City Marathon
November 5, 2023 – Runners will take on the marathon to support CMT research.
TD Bank Five Boro Bike Tour
May 7, 2023 – Riders will take on the streets of NYC free from cars and tackle the 42 miles.
Jaxson’s Shotguns & Guitars
Thank you to everyone who attended this fun event with music, shoes, and plenty of shotguns, for Jaxson's Cure. For the entire photo gallery follow this link.
Can Existing Drugs Treat CMT?
HNF, in partnership with Rarebase, is leading the charge in the first-ever research initiative to tackle multiple types of CMT in one project using its tech-enabled drug discovery platform called “Function.”
SORD Webinar – Part 2 – Clinical Trial Update
Clinical Trial Update
Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases The Battersby Lab received a $55,000 donation from US donors to advance our understanding of mitochondrial diseases, thereby enhancing future treatments and the possibility of...
The Key Role CMT Patients Play in Research
Presented by: Joy Aldrich, HNF GRIN Patient Registry Coordinator Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In...
Applying for Social Security Disability 101
The Social Security Administration (SSA) doesn’t make it easy for those with CMT to get the Social Security Disability Benefits they deserve.
Featured
SORD Webinar – Part 2 – Clinical Trial Update
Clinical Trial Update
How to get genetic Testing: The CMT Genie
Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.
Pharnext Announces On-Schedule Completion of Patient Enrollment in its Pivotal Phase III Trial of PXT3003, the PREMIER Trial, for the Treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A)
Pharnext Announces On-Schedule Completion of Patient Enrollment in its Pivotal Phase III Trial of PXT3003, the PREMIER Trial, for the Treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A)
Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT
Could CMT’s Awareness Campaign Begin with CMT (Country Music Television)? Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine...
Featured Webinars
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
Cannabis & CMT
An insightful CMT-Connect Webinar discussing CBD and Cannabis for CMT symptoms
UPCOMING EVENTS
TCS New York City Marathon
November 5, 2023 – Runners will take on the marathon to support CMT research.
TD Bank Five Boro Bike Tour
May 7, 2023 – Riders will take on the streets of NYC free from cars and tackle the 42 miles.